Tubes & Adnoid Surgery

Joseph was a champ with his surgery on August 5th. He required extra oxygen when coming out of the anesthesia like his last procedure. He should be feeling better each day. He's congested with a snot nose which is expected after this type of procedure.

Last week, we had blood drawn for the genetic testing.

This is all exciting to me :) I have this checklist until the end of the year &  then condensing dr.'s hopefully!
Genetic blood work - check
Surgery - check
September - ent follow up appt
October - pulmonologist , GI & developmental pedi follow up
December -MRI, neurosurgeon, genetic dr results

Goal is only see the dr that require medicine twice a year :)

Ladies & Gentlemen We have a Diagnosis

I wanted to update everyone on Joseph's diagnosis of --- Cerebral Palsy. His neurosurgeon kept telling me the definition of CP while I was at the appointment to look at Joseph's MRI of his enlarged ventricles. She had been in the room for about an hour & was explaining that yes his ventricles were very mildly enlarged and there was no reason to do anything. Then, she was asking me questions about his army crawling, etc. After I left, I started thinking about what she had said & called the neurologist who completely agreed that he has CP. This is hopefully going to help us start receiving some financial assistance in the medical field. There is  a program called Medicaid buy-in for children with special needs & SSI that he should be eligible for now. If you know anyone with questions about all this please have them contact me. I have spent literally hours dealing with this stuff - to the point that the lady at the Medicaid office here in town tells me you need to become a consultant that people come to for help. She is super sweet and was so upset to see me back with him and a diagnosis. Remember - God uses everyone! I love that lady.

Anyways, this website is fabulous & I encourage you to go look at it.
http://cerebralpalsy.org/

I will post again Tuesday after surgery! Have a blessed weekend!