tag:blogger.com,1999:blog-30887841462836971282024-03-14T10:57:22.813-07:00The Kammerer FamilyJoey, Jenny, Jordan, & Joseph Kammerer
Est: August 9, 2008Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.comBlogger356125tag:blogger.com,1999:blog-3088784146283697128.post-44609140391563239282014-09-05T20:16:00.002-07:002014-09-05T20:16:34.929-07:00Happy Grandparents Day<div style="text-align: center;">
Jordan's school had breakfast today to honor all the Grandparents. </div>
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Ya Ya & G Pa went with us to see Joesph ride his horse!</div>
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Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-44271105127472057782014-09-05T19:59:00.003-07:002014-09-05T19:59:30.735-07:00Reality I am always mindful to keep my posts positive, on the bright side of things, and not too crazy with emotion. Well, as everyone else is taking Pinterest inspired Facebook worthy 1st day of school pictures, here is what happened on that day to me. Jordan was in a fit throwing mood that could not be shaken with time out, spanking or being ignored. She started her day in the Owls class - hence the dress. well, you see the dress was not what she had in mind I suppose so a fit was next and we are working on the fact that if you throw a fit you will not get what you want at all. Once we were at school, she calmed down and had a fun day. It was a day - I will leave it at that.<br />
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I know there are some moms out there that can appreciate this and know - you are not alone!<br />
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The house was a wreck - clothes everywhere! Just for my friends who think - you house is always clean and beds made , etc ....</div>
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Here is a fun thing we were able to do! We had a garage sale & sold some things on craigslist, then took the money to update the kids room. I got to decorate a room for my children for the first time. I was so excited! I am completely happy with the way it turned out. We sold the crib and Joey is designing a railing system for the bottom for Joseph.</div>
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The updated bathroom with fun finds from Hobby Lobby!</div>
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Joey hung up all the 8 by 10's I wanted of Jordan's and Joseph's first year of life. I absolutely love them and excited they are now on display.</div>
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Joseph started Wee Care & I was able to snag some pictures of him and Jordan :)</div>
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Joseph loves playing in the leaves now! </div>
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Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-63810916599143936582014-09-05T19:33:00.002-07:002014-09-05T19:33:35.807-07:00"Vacation" at Canyon LakeThank You Roos Family for allowing us to have a great getaway at Silverleaf Resort! Jordan was excited to be at a hotel & tell everyone she was on vacation :)<br />
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Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-62024674551843481162014-08-06T19:16:00.002-07:002014-08-06T19:23:15.479-07:00Tubes & Adnoid SurgeryJoseph was a champ with his surgery on August 5th. He required extra oxygen when coming out of the anesthesia like his last procedure. He should be feeling better each day. He's congested with a snot nose which is expected after this type of procedure.<br />
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Last week, we had blood drawn for the genetic testing.<br />
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This is all exciting to me :) I have this checklist until the end of the year & then condensing dr.'s hopefully!<br />
Genetic blood work - check<br />
Surgery - check<br />
September - ent follow up appt<br />
October - pulmonologist , GI & developmental pedi follow up<br />
December -MRI, neurosurgeon, genetic dr results<br />
<br />
Goal is only see the dr that require medicine twice a year :)<br />
<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-78909893250924799132014-08-01T20:11:00.001-07:002014-08-01T20:11:37.740-07:00Ladies & Gentlemen We have a DiagnosisI wanted to update everyone on Joseph's diagnosis of --- Cerebral Palsy. His neurosurgeon kept telling me the definition of CP while I was at the appointment to look at Joseph's MRI of his enlarged ventricles. She had been in the room for about an hour & was explaining that yes his ventricles were very mildly enlarged and there was no reason to do anything. Then, she was asking me questions about his army crawling, etc. After I left, I started thinking about what she had said & called the neurologist who completely agreed that he has CP. This is hopefully going to help us start receiving some financial assistance in the medical field. There is a program called Medicaid buy-in for children with special needs & SSI that he should be eligible for now. If you know anyone with questions about all this please have them contact me. I have spent literally hours dealing with this stuff - to the point that the lady at the Medicaid office here in town tells me you need to become a consultant that people come to for help. She is super sweet and was so upset to see me back with him and a diagnosis. Remember - God uses everyone! I love that lady. <br />
<br />
Anyways, this website is fabulous & I encourage you to go look at it.<br />
<a href="http://cerebralpalsy.org/">http://cerebralpalsy.org/</a><br />
<br />
I will post again Tuesday after surgery! Have a blessed weekend!Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-39878227515917787902014-07-31T15:07:00.002-07:002014-08-06T18:36:35.871-07:00Family Update!Happy Summer! <br />
<br />
First, I wanted to let you all know I fixed the videos that I had posted a while back :) Joseph's horse video & Jordan's swimming lesson video.<br />
<br />
Jordan - Oh sweet, ball of energy, smart & loving Jordan. She is loving school & all the fun water festivities the summer brings! She is a huge help lately with her brother & makes him laugh. I heard the annoying words I thought I would never hear the other day - "Mom he started it!" I was so excited the kids were interacting & Joseph was annoying her by pulling her hair. I see this is as huge sibling progress :)<br />
<br />
Joseph continues to receive all 8 therapy sessions a week. He is making progress & working hard at new accomplishments. He still attends horse therapy once a week. Joseph's horse Josh passed away unexpectedly a few weeks ago. He now rides a horse named Zipper & Stephanie the PT had Zipper trotting last time we were with Joseph. He thought it was hilarious to bounce up and down. He has learned how to tell Zipper to "walk on" - go - by patting him. He has to either make a sound or pat him in a certain spot for him to go & he likes that a lot. He is able to maintain his balance holding on to the couch for quite a bit longer now & has tried to side step a few times. Just this week we have started the process of getting a walker ordered. This will allow him to be upright & start walking with assistance. He is a fish! He gets all excited when you tell him he is going swimming or to Schlitterbahn. He is all about the water :) He has his adenoids taken out & ear tubes put in on Tuesday, August 5th. He has had his blood - as well as ours - drawn to run a very extensive genetic test. We met with a genetic counselor first who explained that the test will look at the specific genes and look for abnormalities, mutations, deletions, etc that could be the cause of what is going on with him. We will know the results in December. The test will also let us know if he has anything that may appear in the future. Pretty crazy all the info we will receive when he gets that back. If you are curious, google whole x-ome test & you will find more information that will answer your questions. <br />
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Joey & I are doing well. We have another huge praise report :) We went to Houston for the baby shower a few weeks ago. I had saved money & was somewhat prepared for the trip. That Friday that we left a sweet lady that is part of Joseph's care called & said she wanted to bring something by. I said sure come on over. she had me come on the porch & handed me an envelope of money. She said God told me you needed this today & I am just delivering. Her & I are finance buddies - we encourage each other in that regards. She is always impressed with how we handle money & says I need to use that gift to bless others. I was shocked & hugged her while we both cried. I explained to her that I had needed that for the trip we were fixing to take & she was so excited she had obeyed :) Isn't God amazing? Just blows my mind how he cares about each one of us & the lives we are living!<br />
<br />
I was given this verse by a sweet lady at church a few weeks ago when I was feeling run down, tired, and had no motivation. It has really helped me & I know it will bless you too!<br />
<br />
<div class="poet1-vnn-sp">
<span class="reftext"><a href="http://biblehub.com/isaiah/30-15.htm"><b>15</b></a></span>This is what the Sovereign L<span class="smallcaps">ord</span>,</div>
<div class="poet2">
the Holy One of Israel, says:</div>
<div class="poet1">
“Only in returning to me</div>
<div class="poet2">
and resting in me will you be saved.</div>
<div class="poet1">
In quietness and confidence is your strength.</div>
<div class="poet2">
But you would have none of it.</div>
<br />
I just love the last part - but you have done none of it. This is a warning for the rebellious Judah. It made me think - dang it - I am going to do that.. There is absolutely no way in my human power I would be able to function on a daily basis. Seriously, all these therapists in & out, people asking questions, seeing kids younger than Joseph move up in ability & walk, handling Jordan & her attitude, keeping up a house, cooking, cleaning, entertaining, working out, dr. appointments, insurance phone calls, & work. really people come on - that is all God's Grace! Yet, all we are to do is turn to our Heavenly Father & rest! That's it. That's where my strength comes from. Now before y'all out there reading this get all crazy on me hear this out - a real practical ways to rest amongst the chaos:<br />
Pandora radio - find a Christian station & leave it there! Listen in the car, while cooking, cleaning, doing dishes etc... This blesses me so much. The other day when I was having one of those life is not fair moments this song came on<br />
<br />
<div class="verse">
I learned the lines and talked the talk<br />
'cuz the road less traveled was hard to walk<br />
It takes a soldier<br />
who knows his orders<br />
To walk the walk I'm supposed to walk</div>
<div class="verse">
Love like I'm not scared<br />
Give when it's not fair<br />
Live life for another<br />
Take time for a brother<br />
Fight for the weak ones<br />
Speak out for freedom<br />
Find faith in the battle<br />
Stand tall but above it all<br />
Fix my eyes on You<br />
On You</div>
<br />
Love the words!<br />
<br />
Hope everyone is enjoying their summer & staying cool! Be blessed!Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-60212831107037134462014-07-31T13:57:00.000-07:002014-07-31T13:58:49.757-07:00Fun in the Sun!<div class="separator" style="clear: both; text-align: center;">
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-10009988820149980432014-07-23T12:32:00.001-07:002014-07-23T12:32:23.181-07:00Colton Mitchell's Baby Shower<div class="separator" style="clear: both; text-align: center;">
Joey & I escaped town without any children to enjoy some time with friends & family! We celebrated welcoming a new arrival soon - Colton Mitchell! We had fun hanging out with the Kammerer family.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqtddWEMo0uJWv-wISQoCvRSlqQTvqWnn_fjb85sNfuayX5SE8vy4x1vdCPC5c4AyVH4_7bnxskmHbp0qKGm3IUjmbD22OSOOHIIhCDNTJQvAGbbT9nAX0QwxUVA2WvcEZw7Xx76MTG_4/s1600/IMG_4060.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqtddWEMo0uJWv-wISQoCvRSlqQTvqWnn_fjb85sNfuayX5SE8vy4x1vdCPC5c4AyVH4_7bnxskmHbp0qKGm3IUjmbD22OSOOHIIhCDNTJQvAGbbT9nAX0QwxUVA2WvcEZw7Xx76MTG_4/s1600/IMG_4060.JPG" height="240" width="320" /></a></div>
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We ate dinner at Joe's Crab Shack! Joey was excited & had way too much fun eating crabs! <br />
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-50611326897985964222014-07-23T12:14:00.001-07:002014-07-23T12:14:41.969-07:00Color me RAD<div class="separator" style="clear: both; text-align: center;">
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-16367411726915450472014-07-23T12:07:00.001-07:002014-07-23T12:26:50.609-07:00July 4th Festivites<div class="separator" style="clear: both; text-align: center;">
July 3rd we decided to have some fun & go to the Children's museum. Joseph had his PT there & loved having all the toys to play with while he was working.</div>
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That evening we decided to take the kids to the Children's Parade in Seguin. We ended up trying to walk along, but Jordan was in melt down. Her legs were cramping so we ended up going home and resting. Next year, we will decorate a motorized vehicle now that I know what this is all about!<br />
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-4050276119796100922014-07-23T11:56:00.002-07:002014-07-23T11:56:30.317-07:00Girls Just Want To Have FUN!<div class="separator" style="clear: both; text-align: center;">
Unc, Susanne & Courtney came in for a week to visit from Arkansas! We absolutely loved having them around to play with and hang out together. Schlitterbahn was a must! Jordan & Courtney rode the Master Blaster. Everyone - including Joseph - rode the Falls. He was fully supported in his life jacket and slept through the entire ride. He loves the freedom he has in the water & playing with everyone in the kid areas. Jordan absolutely adores Courtney & asks everyday when we will see her!</div>
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Pedicures! They filled up the spa with 5 people getting manicures & pedicures. <br />
Girls always make time for pampering.<br />
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Magic Time Machine Restaurant was a hit with the kids! Their favorite waitress was of course - ELSA! They were not fans of the "scary" people.<br />
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HAPPY BIRTHDAY COURTNEY!</div>
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-75306275321734530852014-06-28T21:34:00.001-07:002014-06-28T21:34:15.260-07:00Happy Summer 2014Summer Time! I love summer, especially living in New Braunfels - the river, Schlitterbahn, swimming pools, ice cream - it is the absolute best :) <br />
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We are doing well & enjoying some time with friends & family. Jordan has continued to attend pre-school at First Protestant. she loves her friends & teachers. Her latest accomplishment is writing her name & learning her letters. She had a dance recital earlier this month & completed 2 weeks of swim lessons. She loves to swim and has learned the front crawl regular swimming), back floating with kicking & the breast stroke. <br />
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Joseph continues to make progress & is doing well adjusting to having 8 therapy sessions per week. He added vital stem therapy to improve his muscles in the mouth & throat that assist in swallowing properly. He is improving by leaps & bounds. He doesn't mind it all because he eats through the entire session. We have a company that is servicing his needs at home. This is a huge answer to prayer. He has had another MRI that showed his 3rd and lateral ventricles in his brain were mildly enlarged. We have seen a neurosurgeon & she said it is extremely slight
enlargement. He does not require any action to be taken at this time. He has another MRI in December to check again & see what has developed in 6 months. The neurosurgeon was extremely helpful & discussed CP (Cerebral Palsy) as a diagnosis for him based on the definition which is any trauma to the baby during pregnancy, delivery or right after birth that affects muscle movement & physical developmental delay. I have since called back to the office & am praying that the neurosurgeon diagnoses him with that in order to allow us to receive assistance with his care. This diagnosis was brought to the attention of a neurologist last summer & he felt it was too early at that point to diagnosis him with that & his therapists didn't see any indications of CP last summer. He has had a ct scan of his sinuses to determine a plan off action as far as any surgery or the best route to take in order to keep his sinus issues under control. He will have a whole xome done in a few weeks. Our insurance will be covering at 100%. Joey & I will get blood drawn as well that day.<br />
He is sitting quite a bit longer unsupported & loves to jump in the bouncer we have for him. <br />
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-22589571115306950652014-06-28T21:14:00.001-07:002014-07-31T13:45:47.049-07:00Swimming Lessons & Schlitterbahn<div class="separator" style="clear: both; text-align: center;">
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-46843225309778471632014-06-28T21:03:00.002-07:002014-06-28T21:03:36.233-07:00Can You Feel the Love Tonight?Jordan performed her ballet dance to the Lion King's - Can You Feel the Love Tonight. She did wonderful and was a beautiful ballerina! We are so proud of how well she can perform. She made huge progress through out the year and became quite the tap & ballet dancer. In typical Kammerer household fashion - Joseph had an allergic reaction to his antibiotic the night before the rehearsal which lead to an ER visit and a dr. visit the day of the rehearsal. Thank God for awesome - Ya Ya - who took her to rehearsal & was my right hand woman for the day. The amazing Nanny stepped in that evening and took a shift so I could sleep. We have the absolute best Grandparents ever :)<br />
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Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-10621687297280851132014-06-28T20:42:00.002-07:002014-06-28T20:42:54.224-07:00Happy Easter! He is Risen!<div class="separator" style="clear: both; text-align: center;">
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-43884166633546930702014-06-28T20:25:00.002-07:002014-07-31T13:58:04.789-07:00Joseph Riding Josh - his horse<div class="separator" style="clear: both; text-align: center;">
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Joseph's progress riding the horse is really remarkable. He works with his physical therapist, Stephanie, and the wonderful Family - The Oliver's - that own Hallow Tree Ranch. He is incredibly happy when he rides. He smiles and kicks his feet when we pull in the ranch. I know he feels on top of the world riding Josh!<br />
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-51380507776047564372014-05-03T20:54:00.001-07:002014-05-03T20:54:28.495-07:00Spring Fun!<div class="separator" style="clear: both; text-align: center;">
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-14447339287496463002014-04-03T19:20:00.001-07:002014-04-03T19:20:54.172-07:00Miracles DO Happen! God is ALIVE!My goodness time flies! I have so much to rejoice about over here it is going to be a long post! Hang on til the end! This is good :)<br />
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The first amazing thing is that Joey has been and continues to listen to the song that has these lyrics - <br />
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When you walk into the room<br /> Everything changes<br /> Darkness starts to tremble<br /> At the light that you bring<br /> And when you walk into the room<br /> Every heart starts burning<br /> And nothing matters more<br /> Than just to sit here at your feet<br /> And worship you<br /> We worship you<br /><br /> Chorus:<br /> We love you<br /> We'll never stop<br /> We can't live without you, Jesus<br /> We love you<br /> And we can't get enough<br /> All this is for you, Jesus<br /><br /> When you walk into the room<br /> Sickness starts to vanish<br /> Every hopeless situation ceases to exist<br /> And when you walk into the room,<br /> The dead begin to rise<br /> 'Cause there is resurrection life<br /> In all You do<br /><br /> Bridge:<br /> Come and consume, God<br /> All we are<br /> We give you permission<br /> Our hearts are Yours<br /> We want You<br /> We want You</div>
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<span>We had really been struggling financially in February. Medical bills from the 2013 year were piling up from Joseph's surgery, appointments, and blood work. I started a Bible Study called "Experiencing God." During the first week, I was moved to use my Christmas money to pay medical bills and start payment plans on the ones I could not pay off right away. Ouch! really God, I never have money for myself to splurge on things and I had been debating for a month what to do - well I did what I was told. I kept all bills from going to collections and moved forward. I felt a huge sense of relief after doing that. I now knew that if any more bills came, they would have to up to the Lord to pay. </span><br />
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<span>Joey & I had been blessed with a weekend getaway to Fredericksburg at Christmas. We were both excited to go, yet knew we still had to pay to eat, gas, etc... The week before we were to leave I found out that we were given $150 to help with childcare expenses from Any Baby Can - an organization that helps families with special needs kids. I thought to myself wow that is great. Surely we can eat on that for a weekend. As I continued to pray about the weekend & really spending time with Joey, God laid it on my heart that he has more in store for us for the weekend. Well, he sure did show up in a mighty way! We found out we were getting a tax refund. As I prayed about how much to allow us to spend, God told me to tithe to ourselves - 10%. Sweet! That was more than we had planned on taking. The rest paid off a credit card and more bills :) </span><br />
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<span>The day we were leaving, Joey sends me a text that he received an unexpected bonus at work. What? Seriously! Awesome! We were both on cloud 9 and just blown away at Gods plan. Then Joey walks in the door and says Jenny this envelope was taped to the door. Inside was $100 bill &<br />
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Matthew 22:37-39</h3>
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New International Version (NIV)</div>
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<span class="text Matt-22-37" id="en-NIV-23910"><sup class="versenum">37 </sup>Jesus replied: <span class="woj">“‘Love the Lord your God with all your heart and with all your soul and with all your mind.’<sup class="footnote" value="[<a href="#fen-NIV-23910a" title="See footnote a">a</a>]">[<a href="http://www.biblegateway.com/passage/?search=Matthew%2022:37-39#fen-NIV-23910a" title="See footnote a">a</a>]</sup><sup class="crossreference" value="(<a href="#cen-NIV-23910A" title="See cross-reference A">A</a>)"></sup></span></span> <span class="text Matt-22-38" id="en-NIV-23911"><span class="woj"><sup class="versenum">38 </sup>This is the first and greatest commandment.</span></span> <span class="text Matt-22-39" id="en-NIV-23912"><span class="woj"><sup class="versenum">39 </sup>And the second is like it: ‘Love your neighbor as yourself.’</span></span></div>
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What? Joey goes and checks the front door (of course, the natural thing to do) & the mail. Yes, in the mail was an unexpected respite check. Now by this point we are looking at each other with our mouths wide open saying Praise you Jesus! Thank you for providing for our family.<br />
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Seriously, this was amazing! Fredericksburg was marvelous! The day we returned from the awesome weekend, we found a statement saying one bill was to be paid immediately & guess what - we had the cash.<br />
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I seriously can not tell you how many little incidents have happened since then that make me just smile knowing God cares about everything our hearts desire! <br />
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Joseph's equipment was delivered and he loves it! He was waving to everyone as I pushed for a walk downtown. He could see and was positioned correctly in his wheelchair/stroller. He was in his stander five minutes and smiled with his hands on the wheels and tried to push himself. Oh pure joy fell over me. I was just amazed at how much freedom he must have felt being up off the floor. His tray we out on with some toys and he was even more excited! <br />
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This equipment did not come easy! I have been fighting with BCBS for 6 weeks to get this approved. I used to verify insurance at an outpatient rehab place here in town when I was in college, little did I know that was part of a divine plan to prepare me for this phase of my life. I appealed twice and finally won :) The plan was to have this equipment be the first thing hit the insurance in January because it would meet the deductible & the rest of the year would be covered at 100%! An incredible organization - Variety of Texas - agreed to pay our portion of the equipment, which was the amount of the deductible. Again - we serve an absolutely amazing God! As you know, this did not work out according to the plan, and medical bills went to insurance before the equipment, yet I have no doubt in my mind when it's all said and done, the money will show up when it's needed! <br />
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Jordan also got some new equipment! She has her first bicycle! I had been getting impatient trying to find one for her that was the right size, princess, etc.... Joey came to look at a few with us at Wal-Mart & said we should really wait until we have the right one, this one is too small for her. Being the nice wife, I agreed reluctantly. Well, Joey was right, a bigger, better bike was on sale at Target for $30 off. Thank you Jesus for that blessing! </div>
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Happy St. Patrick's Day! Of course, I always think of my Memaw on this day. She loved the Irish!</div>
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Love all her funny faces! </div>
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He's just too stinking cute :)</div>
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Jordan has made great progress with her dancing skills! She loves tap & ballet now!</div>
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The Bluebonnets are absolutely breath taking right now!<br />
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Army Crawling!<br />
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Metabolic Geneticist Results<br />
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Joseph's Organic Amino Acids were in the low side of normal & his n-glycates were normal. His o-glycates were abnormal but not diagnosable. We will be getting a full panel of o-glycates done again as well as more chromosome testing when we go back in June. The dr may have us do the tests before the office visit, but I have not heard back on that yet officially. The reason we are doing all of this is to determine why he has hypotonia. If nothing diagnosable comes back on these tests, then we will just know he has hypotonia and keep moving forward either way.<br />
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Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-75644705770570266642014-02-16T20:25:00.003-08:002014-02-16T20:25:49.728-08:00Change is a GOOD Thing!Here's a family update - <br />
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Jordan - 4 years old! Wow, I just can not believe she is four. I love her personality & am excited to see her flourish this year. She loves reading. Her favorite center at school is book center. She loves to sing! Her favorite songs are right now are the songs on the soundtrack to Frozen. It is a fabulous movie & I am ready for it be out on DVD! She is behaving a ton better & loving being around Joseph. This is HUGE - seriously she wants to hold him, love him, kiss him, etc. It is the sweetest sight to see. She is growing up so fast. <br />
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Joseph - 13 months old :) He is reaching up to play with toys & turn things on. He is able to push up on his stomach and hold his head up for long periods of time. He is trying to army crawl & getting frustrated when it does not work. He gets everywhere by rolling. He is super fast! He is able to stand with support for a few minutes. His core is still really weak so he locks his legs to stand. He kicks constantly. He really likes kicking in the bathtub. He will even do it on command. He smiles when I say kick kick kick then he starts. He is sitting much better & continues to improve on being able to sit without propping. He is now lifting his head if he is in the crawling position. He can not quite stay up on all fours but he is trying. His medical stroller (wheelchair) has been approved by our insurance! His stander will be approved soon. The insurance company originally excluded some options that we need so we had to submit it again. These will make daily life so much easier! We are not giving up on him walking at all - it's the exact opposite. I wanted to get the stroller so that when we are out on a walk, the zoo, etc.... he is supported and in the proper position. He just flops and slides in the regular strollers. This one will make him be upright and working on posture. The stander will be used for a minimum of an hour a day. It will make Joseph work on standing in the proper position. He will gain strength and mobility by being in the stander upright. He is learning to drink out of a cup with a straw. He is able to do this with a cup called a sip a mug :)<br />
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He makes progress and continues to work really hard. He has an appointment on March 4th with the pediatric metabolic geneticist. I am excited to be going to see Dr. Gibson. He is highly recommended by everyone. We will be looking for answers as to why he has the hypotonia. He will look from things like chromosome issues, proteins, enzymes, etc... I am hoping that we will be able to get a full blown genetic test done to be sure there is not an issue with one of his chromosomes.<br />
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Me - oh geeze - where to start? The main thing is that I am feeling much better after a visit to my doctor to adjust my medicine. December and January were really hard emotionally. I was crying all the time when I was at home or church. I have adjusted behaviors and paired with the new dose of meds, I feel like myself again. I am not on Facebook anymore. If you thought I was being rude and deleted you as a friend - sorry. I made the decision and it has really changed my life. I notice myself more involved with my kids and not sitting around staring at a screen. Basically - keeping life simple, organized and actually scheduling me time at home. I am more cautious about committing to something and trying to be less busy.<br />
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Prayer requests - <br />
the most important is for our family unity<br />
Jordan to continue to thrive at school, be more happy, and improve behavior<br />
Joseph to continue to improve physically <br />
Finances - medical bills are piling up so I just need peace about them and paying as we can<br />
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Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-56119775915915267922014-02-16T19:59:00.000-08:002014-02-16T20:31:27.544-08:00The Celebration Continues...<div class="separator" style="clear: both; text-align: center;">
I took cupcakes to Jordan's Class at First Protestant - she loved everyone singing to her & the sweet treat :) All her friends said thank you Jordan & response was oh mom they love me!</div>
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She had her friend Leigh Ann hang out with her on her real birthday! Her first sleep over :)<br />
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At our church, when you turn 4 you get to come in the sanctuary and worship then go to children's church. Emilee was so sweet - she saw Jordan and said "its your first time! yeah!" and she took her hand to lead the way. I absolutely love kids sweet hearts and spirits!</div>
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-40875858169905566232014-02-16T19:49:00.002-08:002014-02-16T19:49:12.265-08:00Jordan's 4th Hello Kitty Birthday Party<div class="separator" style="clear: both; text-align: center;">
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-24590098333059071452014-02-16T19:38:00.000-08:002014-02-16T19:38:28.676-08:00Snow & Princess Jordan<div class="separator" style="clear: both; text-align: center;">
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We were pleasantly surprised when we woke up one morning to SNOW! Seriously, I was clueless that it was even a possibility. We got dressed and played right away! Jordan and I sang the song from Frozen - do you want to build a snowman? <br />
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Jordan & Joey went to the Princess Ball at our church! Seriously it is the absolute cutest thing ever! Dad's and their Daughters at a fancy dinner & dancing. Jordan loved everything about the evening :)<br />
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-54208710282619218162014-01-29T09:09:00.000-08:002014-01-29T09:09:02.146-08:00New Year - 2014I can hardly believe it's already 2014! The new year started and life is in full force around here. I am busy at tutoring with children of all ages. It blesses me to be able to help them succeed :) <br />
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Jordan has made huge improvements since she started going to school 5 days a week. I absolutely LOVE that God has everything in control! We made the decision that Jordan needed to be somewhere else when Joseph is having therapy, the first place I called had the exact opening I needed :) She is now at First Protestant School 3 days a week with a teacher that taught when I worked there. Jordan loves going and all her new friends of course! <br />
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Joseph is continuing to make progress with his therapy. We are waiting for ECI to hire a new speech therapist so that is on hold. I still work with him in that area and he is now chewing more than ever & trying to drink out of a straw :) He is working on sitting and crawling with pt and ot. It is not his favorite thing to do. He would rather roll where he wants to go. He has discovered how to kick while laying down and make noise. He loves it in the bath and is so proud when I say kick and he goes crazy. We should know this week about his medical equipment - medical stroller and stander. Variety of Texas informed us that they will pay the portion we owe of the equipment - $6000. Amazing! Thank you Jesus<br />
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Joey is working at Dibello Architects & loves it. He has had the opportunity to design some awesome houses and is currently working on the new drive -in movie theater that will be here in NB!<br />
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Have a blessed week!Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-7144434269131340582014-01-29T08:58:00.000-08:002014-01-29T08:58:03.057-08:00Happy Birthday Greyson!<div class="separator" style="clear: both; text-align: center;">
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0tag:blogger.com,1999:blog-3088784146283697128.post-32370037256776085742014-01-29T08:57:00.001-08:002014-02-16T19:17:22.066-08:00Joseph Cash is ONE!<div class="separator" style="clear: both; text-align: center;">
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<br />Joseph and Jennifer Kammererhttp://www.blogger.com/profile/17307505633105179237noreply@blogger.com0