Joseph saw Dr. Ghodsi in Austin yesterday. He is a great neurologist & we will be seeing him again in the future! He said Joseph has hypotonia (low tone) which is what we already knew from the other doctors and therapists. He has a global developmental delay (all areas are delayed) He said that the mri he had at 2 months doesn't show anything causing this delay. He had us check his thyroid (we will get results today I think) & referred us to a Pediatric Metabolic Geneticist, Dr. Gibson. He will be able to further test Joseph through blood work & urine analysis. He will be the last stop to check and see if we can figure out why Joseph has hypotonia. If everything comes back normal, then we will know without a doubt that he has this due to being squished inside me and the birth. He suspects that this is the case.
I spoke with the nurse at Dr. Fierro's office (developmental pediatrician) She told me that the blood work they did was normal. His ck level was 52 & normal. His chromosome was normal male genomic. These results will assist Dr. Gibson when we see him.
Like I have said in pervious posts, God created Joseph they way he did & our job here is to love him and help him get better. He has made tremendous strides already this week after surgery. He has been sitting better and even weight bearing on his hands while leaning forward! Yeah Broseph!
We are all still a work in progress & continually remind ourselves to focus on God and the eternal perspective not the worldly view of life.
Love you all!
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